Tag Archives: radiotherapy

Hats off to the NHS Lothian

As I approach the final two days of treatment I have already began thanking the friendly faces who have been responsible in getting me through this journey:

Thank you to Louise, Louise and all the staff at Ward 1. Chemotherapy is a scary word but the team at Ward 1 have created a calm and welcoming environment making it a friendly place.

To the radiotherapy ladies at LA4 aka Top Team! Susan, Wendy, Laura, Kelsey, Alison and Smaira. Thank you for being so friendly and showing a genuine interest in all aspects of my life. From bowel movements, to engagement plans and the baton relay. Like a true friend you have listened to all my mornings and groanings over the past six weeks and even provided chocolate! I will miss my daily visits!

Huge thank you to Dr Stillie, Dr Zara, Lindsay and Louise for planning and explaining my treatment. Thank you for allowing my front runners to attend the meetings and ask endless questions!

Special thank you to Julie and Emily for calming my nerves and constantly reassuring me. You have made a horrible situation bearable for me and my family. You have such a lovely manner and you really do a fantastic job!

Finally, a heartfelt thanks to Hilary Brown and Graeme Walker. You have been a constant source of advice when needed. I am in awe of the work you do and how you do it. You are superheroes in my eyes!

I feel very lucky to have had the support and expertise of all of the staff mentioned above in addition to staff at Ward 2, 4 and 6. I have been continually overwhelmed at the caring manner in which I have been treated at the Royal Infirmary and Western General. The NHS often receives negative press but I would like to challenge this and say the treatment I have received since diagnosis has been second to none. It has been a very challenging time for me and my family but thanks to the people mentioned we have been filled with optimism. From the bottom of my heart and on behalf of my family – thank you!

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This week has been the hardest so far.

I was warned in advance of the side effects associated to the treatment. As per my previous blogs the biggest inconvenience had been the ongoing battle in my bowels. Constipation versus diarrhoea. What would your preference be? Constipation is a welcome relief in comparison to the latter. In addition to this I am learning to accept the change in my body’s appearance. The steroids are causing me to gain weight and the constipation guarantees a bulbous belly. This has caused a few girly tantrums as I moan about turning from Heather into a heifer! However in the grand scheme of things I have bigger fish to fry! What’s more the Funny Boy assures me I am still beautiful. Silly sod!

Heather the heifer??
Heather the heifer??

At the weekend I started suffering from cystitis. Like most unlucky women I have experienced cystitis before. It is a common side effect associated to radiotherapy however on a much more severe scale. Following chemotherapy on Tuesday night I was in a great deal of discomfort and pain which kept me up for the majority of the night. Unfortunately this followed into Wednesday where the pain was beyond inconvenient – it was unbearable. I didn’t want to leave the bathroom, let alone the house. For the first time I found myself not wanting to go to the hospital for my daily treatment. Upon returning home the only relief I found was sitting in a luke warm bath. I spent over two hours in the tub watching movies whilst the Funny Boy brought me cranberry juice and ice lollies (did I say the Funny Boy is my knight in shining armour?) When I eventually brought myself to leave the comfort of the tub I was left with no alternative but to call the Cancer help line. I was in agony. The Johnny Cash song ‘Ring of Fire’ has a whole no meaning to me now. Within 20 minutes of being on the phone I was back in the hospital. With daily visits I am sure you can appreciate the last place I want to go voluntarily is the hospital however I felt a sense of relief upon arrival. Once again I was impressed with the excellent staff who greeted me and assured my complaints were justified. I get the fear I am over reacting sometimes and worry that I am wasting people’s time. However the staff comforted me and within three hours I was discharged with pain killers and antibiotics. This led to a reasonable night sleep – the best I have had in ages. As I write this now I am still in mild discomfort but it is merely an inconvenience opposed to the debilitating pain I was in yesterday. Tomorrow brings the first operation to prepare me for two subsequent doses of brachytherapy. Following a successful series of pre op tests today it looks like I am ready and raring to go!

Yesterday was the first time I felt properly ill. The nature of chemotherapy and the side affects of radiotherapy are gradually having their impact. It is like getting hit by a truck very slowly. My whole body is feeling the effects. My emotions are all over the place too. Trying to plan a wedding is difficult when you find yourself welling up over photos of complete strangers on their special day. However these are all things to be expected and I am nailing this. I am over half way through and as I sit here I still have a smile on my face. The past few weeks have been tough but I have been blessed by great moments shared with my wonderful family and friends. At the weekend I had a long cwtch* with Conor who agreed to my page-boy for the wedding, I brought my sister-in-law to tears by asking her to by my maid of honour and I spent Saturday in the glorious sunshine with my family at the Drymen show. Another highlight this week has been the news of two of my oldest friends welcoming a beautiful baby boy into the world on Tuesday – Jack Harvie – I can’t wait to meet you! What’s more I was I was greeted by a video of Ryan this morning as he stretched his legs and sang a song – hopefully it wasn’t his attempt at Johnny Cash though! Life is beautiful!

Great weekend with my top nephews!
Cwtching with Conor and Ryan! (*Cwtch – Welsh word for an affectionate hug)

So as I approach the last two weeks I would say I am at mile 18 of this marathon. The 18th mile for the Loch Ness Marathon was a monster; steep incline and all uphill but I smashed that and I am going to smash this monster too! #FUCancer